The Boy Whose Skin Fell Off

Overview

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

Details

Status

Released

Release date

March 25, 2004

Original language

English

Countries

United Kingdom

Production

Channel 4 Television,Yipp Films Ltd

Cast

Jonny Kennedy

Director

Patrick Collerton

Producer

Patrick Collerton,Eric Harwood

Budget

Not recorded

Revenue

Not recorded

Homepage

Official site

IMDb

tt0466710